Structure of the PCD-CTN
The PCD-CTN is headed by a coordinating center and is equipped with a steering and executive committee, a data safety monitoring board as well as committees for protocol review, training and standardization. The PCD-CTN also has a strong association with patient organizations and industrial companies.
Our member sites
The PCD Clinical Trial Network currently consists of 29 centers in 17 countries across Europe and Australia - and we are still growing.
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Hover your mouse over each location to see site details.
Excecutive committee
CTN Director
Kim G. Nielsen
Deputy
Johanna Raidt
Deputy
Bernard Maitre
ERN LUNG PCD CORE
Heymut Omran
Coordinating associated member
Petra Pennekamp
Steering committee
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1 investigator from each PCD-CTN member site
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Executive Committee and additional committee members
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Representatives of PCD patient organizations
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Partners
Protocol Review Committee
All clinical trials first reviewed via the PRC. Performed by 1 or 2 permanent review groups all including PCD specialists, a study coordinator, a statistician, and a PCD patient or parent.
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Eric Haarman
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Woolf Walker
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Felix Ringshausen
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Helene Kobbernagel
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André Coste
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Lucy Dixon
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M. S. Destouches
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Lizan D Bloemsma
Standardization of Clinical Trial Outcome Parameters (SOPs)
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June K Marthin
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Jobst Röhmel
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Pinelopi Anagnostopoulou
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Petr Pohunek
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Mieke Boon
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Ela Erdem
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Nagehan Emiralioglu
Data Safety Monitoring Board (DSMB)
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Francesca Santamaria
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Mary Carroll
Training Committee
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Eleonora Dehlink
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Nicola Ullmann
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Bülent Karadag